Planning ahead for research participation – making an Advance Research Directive

Do you have an interest in taking part in dementia research? Are you already a StepUp volunteer, or are you thinking about signing up?

The goal of StepUp is to make it possible for everyone who wants to be involved in dementia research to get the chance to do so.

As part of planning ahead for research participation, you might also consider making an Advance Research Directive.

An Advance Research Directive is a document where you write down your wishes about being involved in health-related research in the future. If you become unwell and are not able to make your own decision about being part of a study, your Directive will help people understand your wishes and preferences. Your Directive can also name people you trust to be involved in decisions about your participation in research studies.

To learn more about making an Advance Research Directive, please download the documents below:

StepUp for Dementia Research volunteers took part in a study to help develop these documents. This project was led by Professor Nola Ries, Faculty of Law, University of Technology Sydney ( and funded by the Australian Association of Gerontology. Thank you to the volunteers who shared their time and insights!