The main purpose of the collaborative is, leveraging the experience and knowledge of the member organisations, to generate new insights and evidence that can help further enhance the service provision and potentially support other similar global initiatives.
StepUp for Dementia Research is an online, postal and telephone service that connects people interested in dementia research with researchers conducting studies into dementia prevention, diagnosis, treatment, care and cure. Anyone aged 18 and over – both with and without dementia – can register their interest. The software matches participants who have the relevant characteristics (age, diagnosis etc), with researchers looking for those characteristics in their study participants.
Join Dementia Research is a national service which allows members of the public to register their interest in taking part in dementia research studies. The service matches interested volunteers with researchers who are seeking participants for their studies. The goal is to make it possible for anyone who wants to be involved in dementia research to get the chance to do so.
Hersenonderzoek.nl accelerates brain research by matching volunteers to neuroscience studies. Anyone aged 18+, healthy people and patients alike, can create a profile on the online platform. The team behind Hersenonderzoek.nl helps Netherlands based brain researchers to quickly find the participants they’re looking for, by pre-screening and inviting people from the registry for their studies.
The Alzheimer’s Prevention Registry and its GeneMatch program connects people who are interested in participating in Alzheimer’s-focused studies with research opportunities taking place in their community or online.
TrialMatch is a clinical studies awareness service that generates customized lists of studies based on user-provided information. Volunteers can easily see what studies they may qualify for in TrialMatch’s continually updated database of more than 750 studies, including both pharmacological (drug) and non-pharmacological (non-drug) studies being conducted at locations around the world and online.
Brain Health Registry is a web-based, observational research study designed to effectively capture extensive amounts of data that may enable researchers to more efficiently identify, assess, and longitudinally monitor the cognitive changes associated with the progression of neurodegenerative diseases and brain ageing. One of the goals of the Brain Health Registry is to assist with recruitment, assessment, and longitudinal monitoring of participants for neuroscience studies.
