About
StepUp for Dementia Research is a research participation and engagement service, a “one-stop shop” that connects individuals – both with and without dementia – with researchers conducting studies into dementia prevention, diagnosis, treatment, care and cure. We make it easier for the brightest minds in research to connect with people willing to donate their time.
StepUp for Dementia Research is the first systematic and inclusive service in Australia designed for the public to express their interest in participating in research and for researchers to connect with those interested in dementia research. For researchers, recruiting participants for dementia-related studies is costly and time consuming. Delays in finding the right people can result in studies taking longer to deliver, often requiring funding extensions. Insufficient study samples limit the effectiveness and scope of research – the difficulty researchers face when it comes to recruiting participants directly impacts their capacity for robust analysis and the generalisation of findings.
StepUp for Dementia Research is led by Professor Yun-Hee Jeon who developed the service in partnership with international and local collaborators. Professor Jeon is the Susan and Isaac Wakil Professor of Healthy Ageing at the University of Sydney. She is recognised as a leader in research to person-centred care, reablement, measuring quality, and outcome measures in dementia and aged care workforce leadership. Her research outputs, and clinical leadership development have been used to inform policy development as well as practice improvement in aged and dementia care. She is committed to advancing participatory science through consumer and community involvement in research and citizen science.
What StepUp for Dementia Research does
- StepUp for Dementia Research is an inclusive Australian research hub that gives everyone aged 18 and over the opportunity to participate in research
- The service is free for researchers to use; its database will be available to anyone conducting ethically approved dementia studies
- The service allows you to donate time (as much or as little as you want to), rather than money
- It places the value and potential of people with dementia at the centre of the solution
- Registration is simple and flexible: participants can sign up with just a few clicks and opt out at any stage
A note on our logo
The StepUp for Research logo was designed by BrandMatters, in consultation with the StepUp for Research team and a Public Involvement Panel consisting of people with lived experience. The rays represent a sun, and form the shape of Australia. The research participant is at the centre of the logo, and the rays (are the StepUp for Research stakeholders: researchers, health and care professionals, carers, loved ones and the public.
The rays also evoke ripples, which represent the knock-on effect of stepping up to participate in research, and the value it provides for other people and generations to come.