When you first register you will be asked a few simple questions about yourself or the person you are registering. This includes address, date of birth, details of any diagnosis and brief details of any past major health issues.
Once you have registered, you can revisit your record and add extra information at any time – this improves your chance of matching to studies. For example, you can list any medications you take or update symptoms.
The information StepUp for Dementia Research collects was agreed to in consultation with people living with dementia and their carers, as well as researchers and healthcare professionals. This has been tested in the UK over the past three years, and has been updated to reflect the systems in Australia.
StepUp for Dementia Research has also been tested with our Public Involvement Panel, comprised of people living with dementia, carers and former carers, and professionals working in dementia-related fields.
Reminder: You own the information you provide. We will not link this to your health records and will only ever update the information with your explicit permission.