When you first register you will be asked a few simple questions about yourself or the person you are registering. This includes address, date of birth, details of any diagnosis and brief details of any past major health issues. Once you have registered, you can...
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Category: FAQs
Can I register on behalf of someone else?
Yes, you can register on behalf of one or more persons providing that (1) to the best of your knowledge, the person you have registered has not expressed any reluctance to participate in StepUp for Dementia Research and (2) it is your opinion that registration is in...
How do I create an account?
If you register online, you nominate an email address as your username and then create a password. If you forget your password it can be reset using the ‘forgotten password’ link or by calling the helpdesk for assistance. Passwords can only be changed once every 24...
How do I register on StepUp for Dementia Research?
Registration is a simple process, and it should only take between 5 and 15 minutes. The time involved depends on whether you are registering for yourself or someone else, and if you’re registering as a person living with dementia (because we have a few extra...
I am matched to a study but I don’t think I should be. Why is this?
Your personal or health information may be out-of-date or entered incorrectly. You can login into your account to review and update your information. Please also note that the recruitment area is defined by postcodes, which can be across state/territory or local...
Am I obliged to take part in a study if I register?
Choosing to get involved in research is an important personal decision. You will never have to participate in a study unless you decide it is the right thing for you or the person you helped to register. It is also important to discuss the possible advantages and...
What happens if I match to a study?
If you are matched to a study, this does not necessarily mean you are eligible to take part. Further checks may be carried out to make sure you are eligible (see [How will researchers use the information I provide?]). If you are eligible, you will be contacted by a...
Will I match to studies? And how long might it take?
Whether you match to a study and how long it takes will depend on your information and circumstances. There are many factors that can affect your likelihood of being matched and approached to take part in a study. These include whether you have a diagnosis of...
What happens after I register?
StepUp for Dementia Research involves three steps: registering, matching, and then deciding on participation. After completing registration, you will receive general StepUp for Dementia Research information, including an information booklet with details on how to...
What sorts of research can I take part in?
StepUp for Dementia Research helps many different types of studies. These studies include but are not limited to surveys about what works in improving quality of life for people with dementia and their carers; drug trials; longitudinal follow-up studies for people who...