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Category: FAQs

What can I do if I have more questions?

For general questions or comments, please contact us via email at stepup.research@sydney.edu.au. You can also call our helpdesk at 1800-STEP-123 (1800-7837-123).Your suggestions about how StepUp for Dementia Research can improve as a resource for you are always welcome!

What is APOE4 and how am I tested?

The APOE (apolipoprotein E) gene is involved in making certain proteins. People who carry APOE4, a version of the gene, have an increased genetic risk of developing Alzheimer’s disease. Knowing whether someone carries APOE4 helps scientists look for early brain...

Is dementia the same as Alzheimer’s?

No. Dementia is a general term relating to a loss of cognitive function. There are several types of dementia, which are caused by different underlying changes in the brain. The most common form is Alzheimer’s, accounting for about two thirds of dementia cases. Other...

How should I describe my symptoms?

Most dementia research studies are looking for particular people. Often this can be based on the severity of someone’s dementia. To help ensure you are matched to the right studies, you are asked to describe your symptoms or the volunteer’s symptoms selecting from...

What if my details change?

You can update your information at any time. You can log in and provide your unique username and password through the website, or call the helpdesk to change your details. If you have registered on the telephone or via post, you will be asked some personal information...