Information security is very important to us. StepUp for Dementia Research will keep your personal information private, secure and confidential. The information entered into our website is encrypted, secured and stored in Australia with the Microsoft provided ‘Azure’ service. Azure meets a broad set of international and industry-specific compliance standards, such as General Data Protection Regulation, ISO 27001, Health Information Portability and Accountability Act, Federal Risk and Authorization Management Program, Service and Organization Controls Report 1 and 2, as well as country specific standards, including the Australian Information Security Registered Assessors Program, UK G-Cloud and Singapore Multi-Tier Cloud Security. Rigorous third-party audits, such as those done by the British Standards Institute, verify Azure’s adherence to the strict security controls these standards mandate. StepUp for Dementia Research keeps an audit log every time a record is accessed.
Your information is managed by StepUp for Dementia Research administration based at the University of Sydney. Only the StepUp for Dementia Research administration and helpdesk staff will be able to access your information after you register and until you match to an ethically-approved study. At that point, your information will be available to the approved researchers of that study. These approved researchers may be employed by universities, healthcare providers or commercial organisations pursuing activities for medical benefit. They are working on ethically-approved studies with employers that have agreed to StepUp for Dementia Research terms and conditions and data processing agreements. All researchers agree to operate in accordance with The Australian Code for the Responsible Conduct of Research and comply with the National Statement on Ethical Conduct in Human Research.
A full list of organisations using the service will be made available once the service is open to researcher registration.
If you have questions or concerns, please view our Volunteer Information Sheet and our Privacy Statement, or contact us at stepup.research@sydney.edu.au or 1800-STEP-123 (1800-7837-123).