Step Up for Dementia Research

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What is this study about? Changed behaviours associated with memory and cognitive decline and the impacts of COVID-19

Thursday, June 18th, 2020

Changed behaviours associated with memory and cognitive decline and the impact of COVID-19: Views and feelings of people living with dementia, families /carer partners and healthcare workers

Researchers at Dementia Centre For Research Collaboration (DCRC), University of New South Wales are looking for participants.

What are the main aims of the study?

The main aims of the study are to find out the views of people living with dementia, their families or care partners and professionals about changed behaviours associated with memory and cognitive decline. We want to find out what people would like to happen if they experience changed behaviours and how people feel about the language used to describe changed behaviours. We would also like to ask a couple of questions about how people have been affected by the COVID-19 pandemic.

What does it involve for a participant?

Participants will be invited to participate in an online meeting (using zoom/ skype) or telephone call that will last approximately 1 hour. They will be asked some questions about their views and concerns regarding changed behaviours they may have experienced, and how they have been affected by COVID-19 social distancing restrictions. There are no right, or wrong answers and we want to understand how people feel.

Participants will be interviewed separately. The duration of the meeting will depend on how much or how little people want to say. Participants do not have to answer anything they do not want to and are free to withdraw at any point during the study with no judgement.

How long is the study for?

The study involves one meeting that lasts approximately 1 hour. The study will continue until mid-2021.

What do you hope the outcomes of the study will be?

The aims of this study are to better understand the views and concerns of people living with dementia, as well as their families or care partners and health care professionals. This understanding will help inform research directions and clinical guidelines with the ultimate aims of improving care and quality of life for people living with dementia.

Where is the study based?

This study is currently being conducted online or over the telephone due to the COVID-19 social distancing requirements. Our research office is located at the Dementia Centre for Research Collaboration (DCRC), School of Psychiatry, UNSW Sydney, Kensington campus.

Who can take part?

We are looking for people with a diagnosis of dementia who are in the early stages, who would like to take part and understand what taking part involves. We would also like to speak to one of their family members or a care partner, and a health care professional (e.g. doctor, carer, etc.) who knows the person living with dementia quite well.


If you think you are eligible to this study, please sign up today!

The University of Sydney

Please note: This service is in the early implementation phase. Find out more.